“As high functioning autistic adults, we have to become our own experts”
I have written this article to explain the way I cope with being an adult with high functioning autism.
But firstly, just a little background on how I arrived at my “solution.”
As we know there is not a “cure” for Autism. There are no magic wands that will make a person neuro typical, and even if there was, I would not want to change who I am anyway. I look around and see many unhappy non autistic people that have their own problems.
For higher functioning autistic adults, there is a lack of services and support to help them function in the world, to help them cope with the difficulty they have in managing their intense emotions.
Autistic adults need help finding psychologists and other medical professionals that have specialist knowledge of autism. Unfortunately the relevant health services are practically non existent here in the UK.
The challenges faced by autistic people fall into two main areas. Firstly, the autistic traits and symptoms that make life difficult and confusing for us. Secondly are the mental health problems faced by so many people with Autism/Asperger syndrome.
To date, I have not discovered a place where autistic people can go to find help for both sides of the problem. There are of course mental health services, and medication for anxiety and depression is quite easily available from your local doctor. But ask them for advice or support for your needs as an autistic person, and you are met with silence. Even after the Autism bill here in the UK there are no services.
More often than not, I know more about autism than the average doctor or psychologist. I have done the research and know how it feels to be autistic. Most high functioning autistic adults, have to get used to not being able to get “expert” help, advice and support.
As high functioning autistic adults, we have to become our own experts
So what is the answer – what works for me?
I deal with the combination of High functioning autism, anxiety, depression and OCD in the following ways:
- Taking the smallest amount of medication for anxiety and depression, that will just take the edge off the worst feelings. With the help of your doctor, you may need to experiment with different medications until you find one that works for you. My present one is Clomipramine, and it seems to work ok. But I do stress just the smallest amount to help you get through the day.
- Relaxation techniques, relaxation music, guided meditation cd’s and massage.
- Learning as much as I can about autism, and how it affects me. This helps me to understand myself more, and leads to a greater acceptance of my difficulties.
I now only take a very small amount of medication, as taking too much will mask the benefits of the relaxation techniques. Taking higher levels of medication for anxiety and depression, creates undesirable side affects, and does not make me a happier person.
I do understand that many people with High functioning autism and Asperger syndrome, will struggle with some of these relaxation techniques, and some may not like the sensation of massage, but I have found them to be very beneficial.
In my role as a tutor to autistic adults, I was using a guided meditation/relaxation technique on a 35 year old person with autism that had intense anger and emotional problems. After we finished the guided meditation session, she commented that it was like, “having her brain massaged”. For the first time in ages she looked relaxed and untroubled, at least for a few hours.
So this may not be a perfect or instant solution for every autistic person, but like I’ve said, it works for me and many other autistic people I work with as a tutor.
The use of meditation and relaxation techniques, are a subject that I will be returning to often in my blog, as I feel the possibilities for an increase in our quality of life are endless whether you are a person with autism or not.
Thanks for reading
Steve
Laura Allen says
Hi Steve,
Do you have any tips for improving / working around executive functioning skills and information processing?
These are the two things that keep reoccurring as problems for me and result in problems in pretty much all aspects of any job I have.
I’m smart and hardworking but I’m starting to wonder if I’ll ever be able to function at the level I should be capable of.
Any strategy’s / advice would be greatly appreciated.
All the best,
Laura.
Steve- adults with autism says
Hi Laura
This is a really, really big topic. And something I also struggle with every day. But in general, I to keep things simple. I make visual lists of things I need to get done, and in the order of priority.
In terms of listening and processing information verbally; this will, inherently will always be a problem. However, lower levels of anxiety will help to enhance our ability to process information. I try to meditate and get some exercise. This really helps with my mental clarity.
Hope this helps a little.
Best wishes Steve
Nils says
Btw, just wondering, don’t you have a subscribe to comments notifications feature? It’d be nice to get an email if someone comments after me.
Now I keep coming back manually but I might miss stuff, esp. if you ask a question.
Might be interesting to look into. Your call of course. Cheers.
admin says
Hi Nils
I never thought of that actually. I will look into that today and find out how to do it.
Thanks for the suggestion.
Steve
Anonymous says
Hi Nils
I have now added a “notify of follow up comments” box. It appears when someone clicks on “reply”.
Thanks for the idea.
Steve
Nils says
No services is horrible. Not a lot better here, especially not for HFA/Aspie adults. I suppose we’re regarded as “better off” and should solve things ourselves.
Now I do have a home support program I hope will help me sort out some of the challenges ahead. It’s no “autism center” but they have the experience — probably because everyone ends up with them due to the lack of specialized services anyways.
Workwise, I’m on a waiting list for a program that is supposedly geared towards autism, but I fear may be limited in scope: low-level labor or software testing. I’d like to get back into a job with a little more prospects.
Wait and see is mostly what I’m at these days. Not much of a solution but it’s something.
admin says
Hi Nils
What country do you live in? I just wondered about autism awareness where you live.
Steve
Nils says
Belgium. Flanders to be more precise, the Dutch-speaking part.
Like I said, it’s not that bad here but not great, esp. for higher-functioning adults.
The Flemish Autism Society does run campaigns. Most people have no clue though, but that’s normal I suppose. Tons of issues I probably don’t know about either — depends on your level of interest.
From what I heard, with social services, ASD is becoming more known. It’s the specialized support of course that’s inadequate: lack of funding is obviously the biggest issue.
admin says
Hi Nils
It sounds similar to the UK. Not a whole lot of support here. Again down to money and awareness.
Hopefully things will change for the better soon!
Steve